I was driving home and thinking over and over, There’s nothing wrong with me. This, despite the doctor saying there was, and then the bombshell he dropped: I would probably have to start giving myself shots.
Earlier I had sat across the desk from a pencil-thin rheumatologist wearing a blue button-down shirt. He had already advised me that the first appointment would take an hour and a half.
I liked his messy desk; it resembled mine at home. I glanced down at the chart where he pointed. “Your X rays and blood work indicate that you are in the early stages of rheumatoid arthritis,” he said. “I’m going to prescribe some pills, but I expect you’ll decide to give yourself regular injections.”
“I don’t think so,” I said, smiling politely. My thinking was: So I’ve been diagnosed with RA. That doesn’t mean that I actually have it. I took the prescription for pills and made another appointment for three months later. Well, whatever.
I pulled into our driveway at home and felt an increasingly familiar twinge in my hand when I turned off the ignition. Ow! Inside the house I dropped my keys and purse onto the kitchen counter.
My husband Gene was full of questions. I put him off. “Here, let me see the pills you’ve got,” he insisted. He sat down and began reading all the detailed paperwork the pharmacy had given me. I hate directions of any kind.
Early the next morning, during my quiet time, I wrote in my prayer journal, “Lord, I am sure this isn’t a big deal. Just don’t let the pain get worse—in fact, take it all away. I trust you to do that. I feel pretty good—most of the time.”
The very next day Gene nagged, “Marion, I’m sure you should be exercising more now that you’ve been diagnosed. Not long ago you walked four miles, then two, now it’s…”
“I’ll start back in the spring. I like early mornings.”
“Come on. I’ll walk with you now. It’s nice outside.”
“Not now,” I snapped, walking away.
Toward the end of the first year, the pain became worse, so intense it exhausted me. My hands and thumbs hurt most of the time. Turning the ignition in the car one day, I yelped in pain. I had to rest both hands in my lap. Finally, blinking back tears, I started the car.
My feet hurt, as did my back. Gene and I curtailed many activities. My energy level drained to zero. So did creativity, enthusiasm—and joy. Many mornings I crawled to the bathroom in the dark for my medications. I kept them under the sink so I didn’t have to bend down or put weight on my hurting feet.
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Comments
I have RA, also have
I have RA, also have Fibromyalgia. No one can understand the pain until they have either problem. My wrist/hands hurt so bad, also knees and ankles. My biggest problem is the drs. can't find a medicine to help. I have tried Humira, but it did not phase the disease. I am back on "pills" that doesn't seem to help much. I try to not say "Why me God", instead I think "Why not me". Your article explained the pain so much better than I can. I am glad the shots helped you.
Thank you for sharing your
Thank you for sharing your journey. This story helps me to understand those around me with RA and the journey they are taking. It also gave me some insight into myself as I get closer to 60 and begin to deal with the minor arthritis I'm beginning to experience. I'm encouraged to deal with the hand I've been dealt, and perservere. God bless!
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